I joined a facebook group a while back, to finally have some support and meet other parent's whose children had SLI. I thought this would help others, as I often feel the information you get should be shared and I hope I can help others. However it, like so many other groups, became more about politics than support, became more about terminology than anything else and I had to leave. It feels sad when this happens, when the 'support' you're supposed to get from others turns negative, so it put me off blogging. Who's to say what I say helps? I don't know, so with that in mind I will share my personal experience and if that is a ripple, if that resonates then I'm happy.
Why it takes an
hour to boil an egg.
For breakfast you
want egg
You say ‘e’ and
stand hands together in prayer
Around the ‘o’ to
show
Egg.
‘What kind of egg?’
I ask
Scrambled, fried,
boiled, poached?
I mime, you nod. I
repeat with whisking whirring palm.
You nod.
And when egg
arrives
Golden whisked with
love
Gleaming like a
fluffy snowfall
You cry
‘Normal!’
You scream
And tears and fists
fly out
I try to calm with
anti-intuitive whispers
In the roar of a storm
We make signs to
each other
Hands throwing
shapes
Ravers bouncing
against
Walls of
misunderstanding
Please let this be
it
Hands in prayer
around an O
Tears dry as the
new egg arrives
It is boiled egg
that is normal egg
Translated
And another attempt
at communication
Begins with a hug.
I can understand and empathise so totally with the situation. Well done Rachel. Nice post. Let's continue to do our best to help our kids. Thank god they have us as their parents coaches and champions.
ReplyDeleteWe all have such individual circumstances and complexity it's difficult with SLI to be able to get heard. I'm lucky my child has had the right help and continues to get support. I hope others have positive outcomes too.
DeleteThank you for commenting Amanda :) Beet of luck x
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